I could not have said it better than in this article. This topic was also recently covered in the New York Times, though in a way that remained "neutral" to abortion in these cases. Still I give the NYT credit for going as far as they did.
This is from Zenit.
http://www.zenit.org/article-21175?l=english
snip
Diagnosed to Die: Hospice Extends to Babies
Facilities Give an Alternative in the Face of Pressures to Abort
By Kathleen Naab
NEW YORK, DEC. 2, 2007 (Zenit.org).- Doctors told Mary Kellett that her son Peter was not worth the resources it would take to treat the chromosomal abnormality they detected before his birth."Wrap him up in a blanket and let him go," they advised. But Peter's older sister discovered on the Internet that not all babies with trisomy 18 -- the condition affecting her little brother -- died before birth. In fact, she found out, some live two or three decades.
Peter's family did not want to abort him. Mary Kellett said the strong discouragement to treat Peter "was and remains the most painful feeling I have ever felt as a mother. We were told he would never contribute to society and would live a life of suffering."
But, she affirms nearly three years later, "Peter is such a great gift to us and to so many. He is a happy, sweet little boy who loves reading the Bible, listening to music and playing with his brothers and sisters. He is not suffering; in fact Peter is the happiest person I have ever met. These special babies contribute to society in the most important way possible: They contribute to our souls."
After her experience with Peter, Mary Kellett decided to found Prenatal Partners for Life, a support group for families who receive adverse diagnoses before or after birth.
"We try to take away some of the fear that these parents often feel and encourage them to embrace the destiny God has planned for their baby, whether it is a few minutes of life or decades," Kellett explained.